Co-developing a digital mindfulness- and acceptance-based intervention for endometriosis management and care: a qualitative feasibility study.
Nina Maindal, Ulrik Bak Kirk, Karina Ejgaard Hansen
BMC Women's Health April 16, 2025 DOI: 10.1186/s12905-025-03731-1 (opens in new tab)
Study at a glance
AI-extracted from the abstract| Characteristics | Qualitative feasibility study Peer reviewed |
|---|---|
| Sample size | 7 |
| Population | Women with self-reported symptomatic endometriosis |
| Duration | Four sessions |
| Topics | Meditation |
| Keywords | Digital mental health Endometriosis Mindfulness-based intervention Patient co-development Qualitative feasibility study Self-management intervention |
| Citations | 4 |
| Key findings | The digital self-management intervention MY-ENDO was experienced positively, with 'knowledge of the disease' and 'management of the disease' identified as crucial for outcomes, and having a contact person was important for motivation and maintenance. |
Abstract
MY-ENDO (Mind Your ENDOmetriosis) is a mindfulness- and acceptance-based endometriosis self-management intervention aimed at teaching women with symptomatic endometriosis how to manage and reduce negative physical, psychological, and social consequences of endometriosis. This study aimed at involving women with endometriosis in the co-development process of a digital version of MY-ENDO to investigate their experiences with and attitudes toward the intervention. The study was designed as a qualitative feasibility study. The empirical material consisted of 35 interviews with seven women who self-reported a diagnosis with endometriosis, based on a semi-structured interview guide. Each participant completed the first four sessions of the intervention and was interviewed before the first and after each of the four sessions (five times in total) during participation. The study was based on a phenomenological approach and the data were analyzed using Braun and Clarke's thematic analysis strategy. Analysis indicated that the two parts of the program called 'knowledge of the disease' and 'management of the disease' with eight related subthemes were crucial for participants' outcomes. In addition, a generic theme called 'motivation and alliance' was identified. The digital self-management intervention MY-ENDO was generally experienced and evaluated as positive. It was considered an advantage that the program was specifically tailored to and targeting endometriosis as well as developed in collaboration with patients. Having a contact person was deemed important with regard to maintenance and motivation suggesting potential consequences for the implementation of this digital solution in clinical practice.
Comparable studies
Other qualitative studies on meditation, most cited first.
Citations in the library
Cites 5
- How Does Mindfulness Meditation Work? Proposing Mechanisms of Action From a Conceptual and Neural Perspective Perspectives on Psychological Science October 14, 2011
- Mindfulness Meditation Training and Executive Control Network Resting State Functional Connectivity: A Randomized Controlled Trial Psychosomatic Medicine March 22, 2017
- Meta-analytic evidence that mindfulness training alters resting state default mode network connectivity Scientific Reports July 18, 2022
- Effectiveness of online mindfulness-based interventions in improving mental health: A review and meta-analysis of randomised controlled trials. Clinical Psychology Review April 1, 2016
- Mindfulness meditation-related pain relief: evidence for unique brain mechanisms in the regulation of pain. Neuroscience Letters April 6, 2012