Mindfulness-based retreat for mothers of paediatric heart transplant recipients: protocol for a pilot intervention study.
Taylor Robertson, Sara Ahola Kohut, Heather Telfer, Mirna Seifert-Hansen, Joanna Mitchell, Samantha J Anthony
BMJ Open July 8, 2022 DOI: 10.1136/bmjopen-2021-060461 (opens in new tab)
Study at a glance
AI-extracted from the abstract| Characteristics | Pilot exploratory mixed-method study protocol Pilot study Qualitative Peer reviewed |
|---|---|
| Sample size | 20 |
| Population | Mothers of paediatric heart transplant recipients |
| Intervention | Mindfulness-based retreat (MBR) |
| Duration | Retreat intervention; data collected 24 hours before, immediately after, and three months post-intervention |
| Topics | Meditation |
| Keywords | Humans Heart transplantation Pilot projects Mothers Quality of life Child Ontario Female Mental health Paediatrics Qualitative research Transplant medicine Paediatric transplant surgery |
| Key points | Proposes a pilot study to assess whether a mindfulness-based retreat is feasible and improves quality of life, distress tolerance, coping, and perceived social support among mothers of paediatric heart transplant recipients. No outcomes are reported; the primary outcomes are implementation feasibility and participants' perception of social support. |
Abstract
Introduction: Mothers are often the primary caregivers for children requiring heart transplantation. Given that a mother's ability to successfully cope with the demands of her caregiving role may be predictive of positive familial psychosocial outcomes, it is critical that maternal coping is assessed and supported in paediatric healthcare. Mindfulness-based programmes are proposed as one intervention that may enhance quality of life, improve distress tolerance and coping and reduce social isolation in caregiving populations. This pilot study aims to investigate: (1) the implementation success of a mindfulness-based retreat (MBR), and (2) the effectiveness of a MBR at improving quality of life, distress tolerance, coping and perceived social support for mothers of paediatric heart transplant recipients. Methods and analysis: A convergent parallel, mixed-method design is proposed for this pilot, exploratory study. Twenty mothers will participate in this pilot MBR held at a resort in Ontario, Canada. Quantitative data will be obtained using five standardised instruments completed at three time points: (T1) 24-hours prior to the intervention, (T2) immediately on completion of the intervention, and (T3) three months post-intervention. Qualitative data will be collected from all participants both through semi-structured focus groups at T2 and individual telephone interviews at T3. Focus groups and individual interviews will be transcribed verbatim for thematic analysis. Quantitative and qualitative data will be merged and compared during interpretation to ensure that the intervention implementation and effectiveness of the MBR retreat are described with comprehensive accuracy. The primary outcomes will be feasibility in relation to implementation effectiveness and participants' perception of social support for efficacy of the MBR intervention. Ethics and dissemination: This study received Institutional Research Ethics Board approval from The Hospital for Sick Children (Number: 1000064719). Informed consent will be obtained prior to participant enrolment. Findings will be disseminated via conference presentations and submitted for publication in a peer-reviewed journal.
Comparable studies
Other qualitative studies on meditation, most cited first.
Citations in the library
Cites 10
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- Evaluation of a Mindfulness-Based Stress Reduction (MBSR) Program for Caregivers of Children with Chronic Conditions Social Work in Health Care May 24, 2006
and 5 more in the library