Implementation considerations of key knowledge users for building online mindfulness-based interventions for people with multiple sclerosis.
Ashvene Sureshkumar, Dorothy Luong, Sarah Munce, Mark Bayley, Monika Kastner, Jillian Scandiffio, Nanette Lai, Gregory Feng, Jiwon Oh, Andrea D Furlan, Abhimanyu Sud, Anthony Feinstein, Robert Simpson
Disability and Rehabilitation April 16, 2025 DOI: 10.1080/09638288.2025.2492312 (opens in new tab)
Study at a glance
AI-extracted from the abstract| Characteristics | Qualitative descriptive study with integrated knowledge translation approach Peer reviewed |
|---|---|
| Sample size | 29 |
| Population | People with multiple sclerosis, care partners, MS clinicians, and MBI instructors |
| Topics | Meditation |
| Keywords | Implementation Multiple sclerosis Online |
| Citations | 1 |
| Key findings | Four themes emerged for implementing online MBIs for PwMS: daily mindfulness integration, clinician awareness and advocacy, validating group experiences, and sustained engagement resources. |
Abstract
Mindfulness-based interventions (MBIs) can effectively reduce stress in people with multiple sclerosis (PwMS). Online MBIs address access barriers, but large-scale implementation from the perspectives of key knowledge users remains understudied. This study explored the implementation considerations of PwMS, care partners, MS clinicians and MBI instructors for building online MBIs for PwMS. A qualitative descriptive design with an integrated knowledge translation (iKT) approach. Virtual semi-structured interviews explored the perspectives of PwMS (n = 10), care partners (n = 3), MS clinicians (n = 8), and MBI instructors (n = 8). An inductive thematic analysis approach was used. Four themes were identified: (1) daily mindfulness: structuring and conceptualizing mindfulness for PwMS, (2) unlocking access through enhanced clinician awareness and advocacy: building pathways to MBIs for PwMS, (3) validating mindfulness experiences: the importance of MBI group composition and instructor interactions for PwMS, and (4) sustained engagement: resources to create and navigate MBIs for PwMS. PwMS valued diverse participant groups and control over tailoring MBIs to their needs. However, guidance from a clinician may be needed to foster self-agency for PwMS. MBIs serve a multifaceted role for PwMS, extending beyond the diagnosis. Shared decision-making amongst knowledge users can enhance flexible programming of online MBIs.
Comparable studies
Other qualitative studies on meditation, most cited first.
Citations in the library
Cites 12
- Mindfulness-Based Stress Reduction in Relation to Quality of Life, Mood, Symptoms of Stress, and Immune Parameters in Breast and Prostate Cancer Outpatients Psychosomatic Medicine July 1, 2003
- Mindfulness‐based interventions for psychological and physical health outcomes in cancer patients and survivors: A systematic review and meta‐analysis of randomized controlled trials Psycho-Oncology September 11, 2019
- Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies Disability and Rehabilitation September 9, 2021
- Online Mindfulness with Care Partnerships Experiencing Anxiety and Depression Symptoms after Stroke: Mixed Methods Case Study Research Journal of Holistic Nursing November 9, 2022
- Engagement Strategies to Improve Adherence and Retention in Web-Based Mindfulness Programs: Systematic Review Journal of Medical Internet Research August 28, 2023
and 7 more in the library