Living with illness and self-transcendence: the lived experience of patients with spinal muscular atrophy.
Journal of Advanced Nursing November 2016 Hsin-Mei Ho, Ying-Hua Tseng, Yu-Mei Hsin et al.
The aim of this study was to explore the lived experiences of patients afflicted with spinal muscular atrophy. Existing research studies on spinal muscular atrophy address the physical and psychological effects and complications of the disease; they also provide suggestions for how to improve the current management of this disease. However, information is limited on the disease process and the...
DOI: 10.1111/jan.13042 (opens in new tab)
Full text (opens in new tab)
Phenomenology
Chronic illness
Disability
Family
+6