Easing the burden of dementia caregiving: Protocol development for a telephone-delivered mindfulness intervention for rural, African American families.
Susan A Gaylord, Keturah R Faurot, Jennifer Shafer, Elondra Harr, Christine Lathren, Isabel Roth, Kessonga Giscombé, Karen M Sheffield-Abdullah, Sharon W Williams
Contemporary Clinical Trials Communications December 2022 DOI: 10.1016/j.conctc.2022.101031 (opens in new tab)
Study at a glance
AI-extracted from the abstract| Characteristics | Single-group, uncontrolled feasibility study Peer reviewed |
|---|---|
| Population | Rural African American informal caregiving teams of people with moderate to severe dementia, including a primary caregiver and a care partner |
| Intervention | Telephone-delivered mindfulness training |
| Topics | Meditation |
| Keywords | African american Care partner Caregiver Mindfulness-based stress reduction Rural |
| Key points | The study aims to determine whether telephone-delivered mindfulness training is feasible and acceptable for rural African American dementia caregiving teams, using an 85% retention rate with completion of at least 6 sessions as the feasibility threshold, and to explore effects on caregiver burden and secondary outcomes. No outcome results are reported in this abstract. |
Abstract
There have been few interventions targeted for rural African American (AA) caregivers of persons with dementia despite their unique cultural, geographic, health-related and socio-economic needs, including relatively less access to-and willingness to engage with-formal supports and resources. One effective intervention, Mindfulness-based stress reduction (MBSR), has been found to be culturally acceptable in AA populations; however, no studies have assessed feasibility, acceptability and impact of an adapted mindfulness intervention targeting rural AA dementia caregivers. The purpose of this study is to 1) determine the feasibility and acceptability of a telephone-delivered mindfulness training intervention in decreasing caregiver burden among rural, AA, informal caregiving teams of people with dementia; 2) to explore the effects of the training on caregiver burden and relevant secondary outcomes for both caregiving team members, including emotional regulation, tolerance of uncertainty, emotional and physical health, family conflict within the informal caregiving team, and self-efficacy; and 3) to explore comfort with and willingness to adopt technologies to access mindfulness practices and existing caregiving educational resources. Our study utilizes a single-group, uncontrolled design to assess the feasibility and acceptability of telephone-delivered mindfulness training designed to alleviate burden for rural caregivers of AA individuals with moderate to severe dementia. A care partner-the person who provides additional help -is included in the intervention. The primary outcome is feasibility of the telephone-delivered mindfulness intervention as assessed by an 85% retention rate with completion of at least 6 of the intervention sessions. Pre- and post-participation interviews assess acceptability.
Comparable studies
Other non-randomized and open-label trials on meditation, most cited first.
| Study | Year | Design | Participants |
|---|---|---|---|
| Mindfulness-Based Stress Reduction in Relation to Quality of Life, Mood, Symptoms of Stress, and Immune Parameters in Breast and Prostate Cancer Outpatients Early-stage breast and prostate cancer patients | 2003 | Pre-post intervention study | n = 59 |
| Exploring self‐compassion and empathy in the context of mindfulness‐based stress reduction (MBSR) Community sample | 2010 | Pre-post intervention study | |
| Mindfulness-Based Stress Reduction Lowers Psychological Distress In Medical Students Second-year medical students | 2003 | Prospective nonrandomized cohort-controlled study | n = 302 |
| Intensive meditation training, immune cell telomerase activity, and psychological mediators. Retreat participants and matched controls | 2011 | Controlled trial with wait-list control group | n = 60 |
| The Effectiveness of Mindfulness Training for Children with ADHD and Mindful Parenting for their Parents Children aged 8-12 with ADHD and their parents | 2011 | Within-group waitlist controlled trial | n = 22 |
Citations in the library
Cited by 2
- Feasibility of a Telephone-Delivered Mindfulness Intervention for Informal Caregivers of Rural-Dwelling African Americans With Dementia. Global Advances in Integrative Medicine and Health 2025
- The Hidden Complexity of Virtual Mindfulness-Based Group Medical Visits: Comfort, Challenge, and the Influence of Social Determinants of Health. Global Advances in Integrative Medicine and Health 2025
Cites 18
- Mindfulness-Based Stress Reduction as a Stress Management Intervention for Healthy Individuals Journal of Evidence-Based Complementary & Alternative Medicine July 22, 2014
- The Cultural Relevance of Mindfulness Meditation as a Health Intervention for African Americans Journal of Holistic Nursing January 17, 2014
- Mindfulness training for psychological stress in family caregivers of persons with dementia: a systematic review and meta-analysis of randomized controlled trials Clinical Interventions in Aging September 1, 2017
- Envisioning a Future Contemplative Science of Mindfulness: Fruitful Methods and New Content for the Next Wave of Research. Complementary health practice review 2009
- Telephone-Delivered Mindfulness Training for People Living with HIV: A Qualitative 360° Inquiry. AIDS and behavior November 2017
and 13 more in the library