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Co-design of an Online Mindfulness Program for Informal Carers of People Living With Dementia: A Qualitative Study of Co-designers' Experience.

Charunya A K R Abeysinghe Mudiyanselage, Seng Giap Marcus Ang, Aisling Smyth, Joanne M Dickson, Beverley Ewens

Dementia 2026 DOI: 10.1177/14713012251364092 (opens in new tab)

Study at a glance

AI-extracted from the abstract
Characteristics Co-design qualitative study Peer reviewed
Population Informal carers of people living with dementia and mindfulness experts
Intervention Online mindfulness program
Topics Meditation
Keywords Co-design Informal carers Online mindfulness Qualitative study
Key findings The co-design process identified key considerations for an online mindfulness program for carers, including the need to recognize carers' roles, promote self-care and acceptance, account for limitations, build virtual social support, and tailor delivery to practical and cultural needs. The authors argue that co-design with lived experience is essential for successful program adaptation.

Abstract

Introduction: Informal carers face significant challenges related to care provision for people living with dementia. Participating in a mindfulness-based stress reduction program could improve the wellbeing of informal carers. However, engaging in these programs can be difficult for informal carers due to the needs of their care recipients.

Purpose: This study aimed to co-design an online mindfulness program in collaboration with a range of stakeholders and those with lived experience as carers.

Methods: This co-design study adopted an interpretive descriptive qualitative approach to the development of the program. The stakeholders (co-designers) included people with lived experience as informal carers and experts with experience in delivering mindfulness programs. The co-designers reviewed the program content which comprised a range of resources including a booklet, online content and audio recordings of mindfulness activities and provided feedback on the content and delivery methods, via one-to-one interviews. The data were synthesised via inductive content analysis.

Findings: Two main categories were formulated: support for participants and program delivery and content. Sub categories for support for participants included, recognition of participants' roles, promoting self-care and acceptance through mindfulness, accounting for participants' limitations, developing a virtual social support network and providing support beyond the program. Sub-categories for program delivery and content included tailoring the program to the practical needs of the participants, providing options for program delivery and ensure a culturally safe program.

Conclusion: Co-design approaches in collaboration with people with lived experience is essential for the successful adaptation of authentic and appropriate programs which account for carers' complex care demands and individual challenges. Co-design is an approach that can provide valuable insight about tailoring online programs for end-users to minimise implementation challenges and maximise the potential benefits.

Comparable studies

Other qualitative studies on meditation, most cited first.

Study Year Design Participants
The varieties of contemplative experience: A mixed-methods study of meditation-related challenges in Western Buddhists Western Buddhist meditation practitioners and experts in Theravāda, Zen, and Tibetan... 2017 Qualitative study with mixed-methods
The Effects of Mindfulness-based Stress Reduction on Nurse Stress and Burnout Nurses in a hospital system 2004 Implementation study with mixed methods
An exploratory mixed methods study of the acceptability and effectiveness of mindfulness -based cognitive therapy for patients with active depression and anxiety in primary care Primary care patients with recurrent depression or recurrent depression and anxiety 2006 Exploratory mixed methods study n = 13
A qualitative study of mindfulness‐based cognitive therapy for depression Participants in mindfulness-based cognitive therapy in a mental-health context 2001 Qualitative study n = 7
Effortless awareness: using real time neurofeedback to investigate correlates of posterior cingulate cortex activity in meditators' self-report Meditators 2013 Qualitative study using grounded theory methodology

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